Medical facilities treating intractable diseases with few affected people are limited and require daily care. Arthrogryposis multiplex congenita (AMC) is a disorder that requires continuous personalized care from birth and includes over 300 pathological conditions. This study examined effective daily care possibilities through longitudinal observations of a girl with AMC from 0 to 6 years in a nursery school, we documented her development by videos and text/drawings (spanning 162 hours and 100 pages of field notes). Qualitative analysis revealed turning points that could lead to the proposal of algorithms for daily personalized care.
Nishizaki, M. (2022). Longitudinal Data for One: Practical Issues Using Observation and Design Thinking from an Ecological Perspective. The 40th annual conference of the Robotics Society of Japan, September 5, 2022.
Nishizaki, M. (2021). Algorithm for detecting longitudinal changes in congenital multiple joint contractures in the everyday environment. The 105th SIG-WIT (Well-being Information Technology) and 15th SIG-AAC (Accessibility) meetings for Information Processing Society of Japan, Mar 5, 2021
Nishizaki, M., Kitamura, K., Motomura, Y., Yamanaka, T., & Nishida, Y., (2020). Longitudinal changes in arthrogryposis multiplex congenita by interactions between the child and the environment. The 34th Annual Conference of the Japanese Society for Artificial Intelligence 2020, Jun 11, 2020